Tuesday, March 16, 2010
Sometimes I feel like Rye is slipping away into his own little world while we are waiting and waiting to get the help we need!
Sunday, March 7, 2010
This is the sensory/self-regulation piece of Autism that I do not understand. When Rye's body appears to be regulated he is better able to engage socially. How can we figure out what his body needs and when he needs it? Today Rye appeared to need lots of physical heavy work to appear regulated that is not always the case. Sometimes heavy work gets him too excited.
At my house we have fallen victim to the park them in front of the television more than we need to. Let's face it when you have a child who is capable of getting into anything but won't move a muscle if a movie is on it is just easier. I am making a packed with myself as of today unless it is a special event or do to illness Friday and Saturdays are the only days the boys will watch movies with a limit of 3 movies a week. That is still a lot but I am trying to be realistic.
Thursday, March 4, 2010
I never knew how many social roles I would take on as a "responsible" adult. Mother, Therapist, Daughter, Wife, Friend, Sister, and Aunt. I now feel like I need to add Mother of a child with Autism to the list of roles, I'm trying so desperately not to label my son yet I'm quickly labeling myself. Should it really make me different, does it make me different? Heck I don't know but it sure feels like I'm sinking into a hole of self-pity and I need to dig my way out and quick.
Solution-I am going to turn my newly found desire for blogging to continue to vent frustrations but also to blog about the positive things we are doing with Rye and Wyatt for that matter. Perhaps if I share the positive and somebody else can share in the positive it will be more than just the ranting and raving of a "Mother of a son with Autism".
One thing that has appeared to work for Rye is using social stories and pictures to explain, predict or remind of social "rules".
The following is an example of a Social Story we used with Rye when he was having difficulty with other children touching his Legos and difficulty with not wanting to take his Legos apart at the end of the day:
My name is
I don’t like it when people touch my Legos or take them apart. The Lego rules at school and at Adventure Club are that Legos are put away and taken apart at the end of the day every day. If I want to keep my Legos together for a long time I need to build a ship or machine at home. At homeI can keep my Legos together for a long time.
Tuesday, March 2, 2010
Well the Shade family has been busy with Rye starting Kindergarten, both Mom & Dad working way too much, the Holidays, a ski vacation, 2 sessions of basketball and 4 sessions of swimming for Rye and Wyatt, Dad coaching basketball, a first time ever getaway to Chicago without kids for Mom & Dad and at the end of January Rye, my sweet little man was diagnosed with Autism.
There it is, to borrow from my husband, the elephant in the room. I can see it in my head rolling off of Dr. Kanne's tongue, "I think you are prepared for this but I believe it is Autistic Disorder". I smiled and nodded and stated "yes, I have thought that for some time". Which I had but finally hearing it out loud by an actual MD sounded a lot like a Judge's gavel hitting the block of wood on his desk.
So I guess where have I been for 6 months, I guess the Shade's have been crazy busy!! I am going to attempt to blog more frequently than every 6 months. Guess I'll just have to see if I can actually pull it off.