Thursday, January 19, 2012

One step forward, Two steps back

For years we have heard from our doctors that “in the new DSM, Autism is going to be classified as a spectrum”.   I don’t think many of us in the autism community were prepared to hear today that the proposed changes may not encompass Asperger’s Syndrome and Pervasive Development Disorder (PDD-NOS) as part of the spectrum.   Furthermore we definitely were not prepared to hear from Dr. Fred R. Volkmar, director of the Child Study Center at the Yale School of Medicine in the New York Times article  that by changing the definition “we would effectively end the autism surge” and“we would nip it in the bud.”   

Are you freaking kidding me! What?  Let me get this straight, if we change the definition, the surge is over, the cure is found and people currently accessing services, may no longer qualify because the criteria has changed and all of a sudden folks with related disorders don’t need the services that are helping them to interact with a world they don’t always understand.  I’ve got to tell you this just pisses me off.    I also find it very interesting that once we finally get the insurance legislation in place all of a sudden changes arise.  

I can't believe that after everything we have been through I now feel RELIEF that my son has a diagnosis of Autistic Disorder instead of Asperger’s Syndrome or PDD-NOS.  I now feel RELIEF that my son meets over eight criteria instead of six across 3 areas of development.  Let’s hope that this “disagreement” among the doctors about how this will affect the numbers is resolved and included in the 10 percent of changes that are yet to be made. Freaking Autism!  I swear one stepforward, two steps back. 

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